Darby maintains their blog Keep On Going...No Matter What! They hope to get the word out about Cystic Fibrosis and some of Brady's other medical conditions just like I hope to spread the word about VLCAD.
I asked Darby to write a guest post for our blog because I've learned so much about Cystic Fibrosis through her & Brady. I've also learned a lot about about how to keep my head above water while working through Klaw's genetic disorder. Enjoy!
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Brady is the happiest little boy you'll ever meet. He doesn't have a
care in the world...he loves his life, just the way it is, and longs
for nothing! Don't you wish to long for nothing one day? I sure do:)
Even though he's made to do 2 breathing treatments, 2 chest therapy
treatments, take 10 medicines, and do multiple g-tube feeds each day,
he is just the happiest thing ever! He looks forward to his breathing
& chest treatments as they are "fun" for him. He even fake coughs
when he sees the equipment! Why is all this necessary for Brady?
He has Cystic Fibrosis... what is Cystic Fibrosis?
We feel honored that the Lord chose us to be Brady's parents, to take
care of him, to raise him, and to love him. We wouldn't want him to
be any other way than he is...regardless of how long he lives.
Currently the life expectancy is about 37 years old, and Brady's 2.5
years old right now. We have plenty of time to show the world how
much we love our son and plenty of time to get the word out about
Cystic Fibrosis, which is a progressive disease with no current cure.
Brady will spend his entire life fighting to breathe...what will you
spend your life doing? Personally, I'm an avid runner, as running
clears my own lungs of whatever is in them, and running will clear
Brady's lungs of all the bacteria/infections in them on a regular
basis. Running is the best form of "natural" treatment for Cystic
Fibrosis patients, and we can't wait until Brady can learn to
run...walking is first on our list though...
he's almost there, but not quite.
Here's a quick example of why running is so important for CF
patients...take a minute and check this out...
Every spring is the Great Strides Walk for Cystic Fibrosis...this will
be our second year walking as last year Brady was in the hospital on
the day of the walk so we weren't able to go.
Check out our Great Strides Page for more information on the walk.
care in the world...he loves his life, just the way it is, and longs
for nothing! Don't you wish to long for nothing one day? I sure do:)
Even though he's made to do 2 breathing treatments, 2 chest therapy
treatments, take 10 medicines, and do multiple g-tube feeds each day,
he is just the happiest thing ever! He looks forward to his breathing
& chest treatments as they are "fun" for him. He even fake coughs
when he sees the equipment! Why is all this necessary for Brady?
He has Cystic Fibrosis... what is Cystic Fibrosis?
We feel honored that the Lord chose us to be Brady's parents, to take
care of him, to raise him, and to love him. We wouldn't want him to
be any other way than he is...regardless of how long he lives.
Currently the life expectancy is about 37 years old, and Brady's 2.5
years old right now. We have plenty of time to show the world how
much we love our son and plenty of time to get the word out about
Cystic Fibrosis, which is a progressive disease with no current cure.
Brady will spend his entire life fighting to breathe...what will you
spend your life doing? Personally, I'm an avid runner, as running
clears my own lungs of whatever is in them, and running will clear
Brady's lungs of all the bacteria/infections in them on a regular
basis. Running is the best form of "natural" treatment for Cystic
Fibrosis patients, and we can't wait until Brady can learn to
run...walking is first on our list though...
he's almost there, but not quite.
Here's a quick example of why running is so important for CF
patients...take a minute and check this out...
Every spring is the Great Strides Walk for Cystic Fibrosis...this will
be our second year walking as last year Brady was in the hospital on
the day of the walk so we weren't able to go.
Check out our Great Strides Page for more information on the walk.
We want CF to stand for Cure Found!
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If you would like to make a donation to help find a cure for Cystic Fibrosis,
I've added Darby's Great Strides widget to my sidebar.
